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Down Syndrome
Organizations
 
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Trisomy 21 Resources

Local Down Syndrome Organizations

Bringing Up Down Syndrome 

BUDS provides opportunities and resources in South Jersey for its members in these areas: Friendship, Inclusion and Advocacy.

 

Chester County Down Syndrome Interest Group

 

Children's Hospital of Philadelphia Trisomy 21 Center

 

Eastern PA Down Syndrome Center 

 

Hopes and Dreams Foundation

Hopes and Dreams is a 501(c)(3) non-profit organization providing inclusive programs in music, theater, dance for children and young adults with Down syndrome and differing abilities. The Hopes and Dreams highlights the talents of participants with various abilities and holds performances based on their interests as well as popular movies and musicals.

 

Montgomery County Down Syndrome Interest Group

The Montgomery County Down Syndrome Interest Group of Pennsylvania (MCDSIG) is a 501(c)(3) nonprofit organization whose mission is to support individuals with Down syndrome and their families from diagnosis to adulthood through education, advocacy, support, outreach, and social opportunities.

Trisomy 21 Parent Peer Program

CHOP's Trisomy 21 Parent Peer Program provides support and resources to families of individuals with Down syndrome by matching them with fellow caregivers.

 

National Down Syndrome Organizations

 

National Down Syndrome Society

The National Down Syndrome Society is a leading human rights organization for all individuals with Down syndrome, involved in research, advocacy and education.

321Foundation

Down Syndrome Advocacy Foundation

The Down Syndrome Advocacy Foundation is a not-for-profit organization [501 (c) (3)] founded by a group of individuals who have children or family members with Down syndrome.  DSAF is dedicated to enhancing the lives of individuals with Down syndrome through advocacy and supporting inclusion within schools, communities, and the work place. 

National Down Syndrome Congress

The National Down Syndrome Congress (NDSC) is a national advocacy organization that provides information and support concerning all aspects of life for individuals with Down syndrome.

National Association for Down Syndrome (NADS)

NADS provides information about Down syndrome, including publications, videos, online discussion forums, conferences and seminars for families and healthcare professional.

 

Down Syndrome Affiliates in Action

At DSAIA, we strive to support and advance the growth and capacity of local and regional Down syndrome associations.  We provide the connections, the inspiration, training, and resources so that our members can meet the needs of individuals with Down syndrome in their communities.  Our members are leaders in every sense of the word.

DS-Connex

Empowering Down syndrome Communities:  We share core values that support the rights of people with Down syndrome.  We have shared experiences with families meeting the needs of people with Down syndrome.  We support advocacy for our community in public policy making.  We value the role of the volunteer.  We believe collaboration builds a stronger community.  We embrace the sharing of ideas to strengthen local impact

Down Syndrome Diagnosis Network 

DSDN is the largest national organization supporting new and expectant parents with a Down syndrome diagnosis. The mission of the Down Syndrome Diagnosis Network is to connect, support, and provide accurate information to parents - and the medical professionals who serve them - from the time of diagnosis through age 3 while fostering the opportunity for lifelong connections. Our vision is that every Down syndrome diagnosis will be delivered in an unbiased, factual, and supportive way every time and that families can quickly find meaningful connections.Since 2014, DSDN has been supporting families and helping them to find connections and information. 

I’m Determined 

The I’m Determined project, a state directed project funded by the Virginia Department of Education, focuses on providing direct instruction, models, and opportunities to practice skills associated with self-determined behavior.

Julia's Way 

An organization dedicated to inspiring parents, medical professionals, and the general public to reimagine what's possible for those living with Down syndrome through education, advocacy, and awareness.

Down Syndrome Medical Interest Group (DSMIG-USA)

Family Ideas Network for Down Syndrome (IL)

Gigi’s Playhouse: Down Syndrome Achievement Centers

With over 55+ brick and mortar locations across the United States and Mexico and 200 inquiries to start new locations all over the world, GiGi’s Playhouse is the ONLY network of Down Syndrome Achievement Centers. Every day, we provide FREE, life-changing therapeutic, educational, and career training programs for 30,000+ individuals of all ages. Through free programs and through our Generation G Campaign for global acceptance, we EMPOWER families by maximizing opportunities for daily achievement and lasting acceptance. To ensure lasting acceptance, we must show the world what individuals with Down syndrome are truly capable of achieving as students, co-workers, volunteers, friends, and valued members of their communities. Our program outcomes help advance this vital social impact goal.

 

LuMind IDSC Foundation

We envision a world where every person with Down syndrome thrives with improved health, independence, and opportunities to reach their fullest potential. We accelerate research to increase availability of therapeutic, diagnostic, and medical care options and we empower families through education, connections, and support. myDSC is a FREE, online library designed specifically for the Down syndrome community. Curated by trusted professionals, myDSC is a comprehensive directory of evidence-based resources and useful tools for individuals with Down syndrome and their families. The library provides members with reliable, up-to-date information regarding: health and wellness, lifestyle, education, medical and research information.

UPS for DownS (IL)

Down Syndrome Pregnancy 

http://downsyndromepregnancy.org

Down Syndrome Pregnancy, Inc. is a nonprofit New Jersey corporation that provides information and support to expectant parents preparing for the birth of a baby with Down syndrome.

 

Down Syndrome Research Foundation 

http://www.dsrf.org/

DSRF investigates best practices and initiates and participates in research studies to gain a better understanding of the learning styles of individuals with Down syndrome.

International Down Syndrome Organizations

Down Syndrome Education International

We work to improve early intervention and education for children with Down syndrome around the world. Our research focuses on developmental research designed to improve speech, language and communication skills, raise levels of achievement in literacy and numeracy, and support effective inclusion.

Down Syndrome International (DSi)

We are a UK based international disabled people's organisation, comprising a membership of individuals and organisations from all over the world, committed to improving quality of life for people with Down syndrome, promoting their right to be included on a full and equal basis with others.

Down Syndrome Australia

Down Syndrome Resource Foundation (DSRF - Canada)

Our vision is a Canada that values and empowers people living with Down syndrome, and promotes social and economic inclusion across the lifespan.

DSRF offers a wide variety of educational and health opportunities to children and young adults with Down syndrome, including ground-breaking one to one reading and math instruction, speech language therapy, occupational therapy, and a variety of adult education programs which prepare our students to live full and fulfilling lives in the community and workplace. Our programs are continually evolving based on the latest intervention research and best practice, and tailored to the individual learner's strengths, interests and needs. 

Down's Syndrome Association (DSA - UK)

Down's Syndrome Scotland

Global Down Syndrome Foundation 

Dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy. GLOBAL’s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the United States committed solely to research and medical care for people with Down syndrome. The Global Down Syndrome Foundation created and organizes the Be Beautiful Be Yourself Fashion Show – and others including Dare to Play Football Camp with Ed McCaffreyDenver Broncos Cheerleaders Dare to Cheer Camp, and the Global Down Syndrome Foundation Educational Grants.

Colorful Books

Books for

Families & Professionals

 
 
Bookshelf

Children's Books 

About:
Diversity
Inclusion
Down syndrome

I'm Like You, You're Like Me
I'm Like You, You're Like Me

By Cindy Gainer

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47 Strings: Tessa's Special Code
47 Strings: Tessa's Special Code

By Becky Carey

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The Abilities in Me: Down Syndrome
The Abilities in Me: Down Syndrome

by Gemma Keir and Adam Walker-Parker

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All the Way to the Top
All the Way to the Top

by Annette Bay Pimentel

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Born to Sparkle: A Story About Achieving Your Dreams
Born to Sparkle: A Story About Achieving Your Dreams

By Megan Bomgarrs & Pete Olczyk

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Celebrate Our Differences: A Dragon’s Story About Different Abilities, Special Needs, and Inclusion
Celebrate Our Differences: A Dragon’s Story About Different Abilities, Special Needs, and Inclusion

By Steve Herman

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The Day You Begin
The Day You Begin

by Jacqueline Woodson and Rafael Lopez

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Down Syndrome Coloring Book
Down Syndrome Coloring Book

By Alfred Kisov

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Different: A Great Thing to Be!
Different: A Great Thing to Be!

By Heather Avis

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D is for Down Syndrome: A Child's View
D is for Down Syndrome: A Child's View

By Amy E. Sturkey Illustrator Ikos Ronzkie

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Eli Included
Eli Included

by Michelle Sullivan Illustrated by Britt Scott

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Every So Often a Zebra Has Spots
Every So Often a Zebra Has Spots

by Lauren Grabois Fischer and Devin Hunt

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God Made Me Juuuuust Right!
God Made Me Juuuuust Right!
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Hannah's Down syndrome Superpowers
Hannah's Down syndrome Superpowers

by Lori Yarborough and Roksana Oslizlo

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Hansel & Gretel: A Fairy Tale With a Down Syndrome Twist
Hansel & Gretel: A Fairy Tale With a Down Syndrome Twist

By Jewel Kats and Claudia Marie Lenart

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My Friend Has Down syndrome (Friends with Disabilities)
My Friend Has Down syndrome (Friends with Disabilities)

By Amanda Doering Tourville

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I am Connor
I am Connor
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I am Lucy
I am Lucy

By Chuck Neighbors Illustrated by Chris Kielesinski

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I Am Not a Label
I Am Not a Label

by Cerrie Burnell and Lauren Mark Baldo

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I'll Walk With You
I'll Walk With You

by Carol Lynn Pearson and Jane Sanders

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I'm Basically a Unicorn: A Celebration of What Makes us Unique
I'm Basically a Unicorn: A Celebration of What Makes us Unique

By Melanie Hawkins

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Just Ask!  Be Different Be Brave Be You
Just Ask!  Be Different Be Brave Be You

By Sonia Sotomayor and Rafael Lopez

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Katie Can: A Story About Special Needs
Katie Can: A Story About Special Needs

by Erin Palmer and John Joseph

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Kids Like Me Learn ABC's
Kids Like Me Learn ABC's

by Laura Ronay and Jon Wayne Kishimoto

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Kids Like Me Learn Colors
Kids Like Me Learn Colors

by Laura Ronay and Jon Wayne Kishimoto

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Meeting Mimi: A Story About Different Abilities
Meeting Mimi: A Story About Different Abilities

By Francie Dolan Illustrated by Wendy Leach

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More Alike Than Different: A Down Syndrome Awareness Tale
More Alike Than Different: A Down Syndrome Awareness Tale
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My Friend Has Down Syndrome (Let's Talk about it Series)
My Friend Has Down Syndrome (Let's Talk about it Series)

By Jennifer Moore-Mallinos

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My Friend Isabelle
My Friend Isabelle

by Eliza Woloson Illustrated by Bryan Gough

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My friend has Down Syndrome (Bullfrog Books; All Kinds of Friends
My friend has Down Syndrome (Bullfrog Books; All Kinds of Friends

By Kaitlyn Duling

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My Life with Down Syndrome
My Life with Down Syndrome
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My Sister Has Down syndrome
My Sister Has Down syndrome

by Stephanie Bentley

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Sabeel and her Superheroes
Sabeel and her Superheroes

By Ayah Sayyed

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Taking Down Syndrome to School
Taking Down Syndrome to School
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This is Ella
This is Ella

By Krista Ewert and Celia Marie Baker

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You Matter
You Matter

by Christian Anderson

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We Move Together
We Move Together

by Kelly Fritsch, Anne McGuire, Eduardo Trejos

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We'll Paint the Octopus Red
We'll Paint the Octopus Red

By Stephanie Stuve-Bodeen and Pam Devito

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What's Inside You is Inside Me, Too
What's Inside You is Inside Me, Too

by Leslie Quinby & Jeannie Visootsak

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World Down Syndrome Day Coloring Book
World Down Syndrome Day Coloring Book

By Rainbow Joy!

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Kids with Capes

Down Syndrome
Self Advocates

 

Resources  for Self Advocates

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Check out these Self Advocates!

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Down Syndrome
Vendors/Businesses

 

Littlest Warrior

Littlest Warrior Apparel was inspired by my son Eli who is my biggest hero. 

Reeves Tees

Reeve's Tees feature unique sayings that promote the acceptance of individuals with chromosomal conditions and intellectual disabilities.  We acknowledge that people with Down syndrome and/or other conditions have some differences - our goal is to help people get comfortable with those differences so that they can move past them to find genuine connection, understanding, and acceptance.

We have developed two lines of t-shirts and other products called "Homies with Extra Chromies"® and "For the S.I.B.S. (Supportive & Inclusive Brothers & Sisters)" to help change perceptions by showing how families and friends celebrate the special differences that our loved ones bring!  

21 Pineapples

Nate Simon, our CEO, 19, has always been known as a fashion icon. From rocking funky Hawaiian Shirts to his love for bowties. Nate loves to be dressed to impress. His infectious spirit is showcased by his fashionable style. Our mission is to change the way others perceive people with Down Syndrome & other special abilities one Hawaiian Shirt at a time. A percentage of all sales will go directly to support Down Syndrome organizations throughout the world.  Some see a disability, we see endless abilities.  Thank you for your support. Let's change the world together one funky shirt at a time!

21 Reasons Why 

Madeline officially added “clothing designer” to her already impressive resume with the launch of her clothing label 21 Reasons Why. The name of her brand was inspired by her passion to find reasons to better ourselves, be more inclusive, healthier, and why we should celebrate life, whilst taking pride in her 21st chromosome. Maddy’s mission is to continue to spread her message of inclusion; that there are no boundaries regardless of your age, size, race, height, or disability. 21 Reasons Why mirrors Maddy’s own daily style that she wears off the runway. A contemporary, edgy women’s ready-to-wear collection, perfect for day wear and yet trendy and versatile for an evening out on the town.

4Leaf Coffee

My name is Stephanie and I am proud to be the owner of 4 Leaf Coffee selling Dreamers Coffee to help bring awareness to the fact that people with disabilities can work, lead normal lives, and achieve their dreams. I am a college student learning about business and now I have the great opportunity to share my dream with others and allow people to enjoy the great taste of Dreamers Coffee!

Lupita Cano, Artist

Lupita Cano is a self-taught abstract painter who loves to share her unique perspective of the world through her art.  Today Lupita's work is exhibited and sold at art walks, craft fairs, gallery shows, coffee shops, regional and national disability conferences, fundraisers, through retail shops and online.  Lupita also contributes to her community by donating her work to charitable causes.  Lupita paints at the Vibrant Palette Art Center in Seattle, and at her home. She enjoys being a business owner, contributing member of her community, and an inspiration to others. Lupita encourages others to "listen to their hearts and take a chance".

Seanese

Sean from "Born the Way." When I was little my parents had to translate my speech because nobody could understand me. They said I spoke "Seanese." Now I am putting my thoughts and sayings on shirts so you can speak Seanese too!

DSDN Merchandise Shop

DSDN is the largest national organization supporting new and expectant parents with a Down syndrome diagnosis. 

Kale Chips Apparel

 
Baby

Information for

New or Expectant Parents

Hi New Parents!

Congratulations!  You may be excited, you may be shocked, you may have a RANGE of feelings.  One thing is for sure, we have all been there!  We are so excited to meet you!  Here are some resources to get you started.  Be sure to visit our Welcome Basket page.  And please, don't hesitate to find us on Facebook.  Or introduce yourself if you bump into us at the grocery store!

                                                                                             With love and excitement,

                                                                                             The families of BCDSIG

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The National Parents First Call Center is a first-of-its-kind, comprehensive full-service professional center that serves expectant parents and medical providers as well as Down syndrome organization leaders and parent volunteers.The National Prenatal First Call Center, caters to the “First Call” needs of expectant parents and medical professionals when they first learn of a suspected or confirmed Down syndrome diagnosis. 

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