Local/Regional Down Syndrome Organizations

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Bringing Up Down Syndrome 

BUDS provides opportunities and resources in South Jersey for its members in these areas: Friendship, Inclusion and Advocacy.

 

Chester County Down Syndrome Interest Group

We’re so glad you found us. Whether you’re expecting a child with Down syndrome, looking for community activities for your loved one, or simply want to learn more about our community in Chester County, we invite you to explore our site.

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Children's Hospital of Philadelphia Trisomy 21 Center

The Trisomy 21 Program at Children's Hospital of Philadelphia evaluates, treats and provides coordinated multidisciplinary care for children and adults with trisomy 21 — also known as Down syndrome.

 

Down Syndrome Association of Central New Jersey

The Down Syndrome Association of Central New Jersey is a non-profit organization, dedicated to providing support, education, opportunity and enrichment to persons with Down Syndrome and their families. 

 

Eastern PA Down Syndrome Center 

 

Gigi's Playhouse, Hillsborough, NJ

 

Gigi's Playhouse, Lancaster, PA

 

Hopes and Dreams Foundation

Hopes and Dreams is a 501(c)(3) non-profit organization providing inclusive programs in music, theater, dance for children and young adults with Down syndrome and differing abilities. The Hopes and Dreams highlights the talents of participants with various abilities and holds performances based on their interests as well as popular movies and musicals. Hopes and Dreams Foundation runs a Buddy Walk each spring in Core Creek Park.  

 

Montgomery County Down Syndrome Interest Group

The Montgomery County Down Syndrome Interest Group of Pennsylvania (MCDSIG) is a 501(c)(3) nonprofit organization whose mission is to support individuals with Down syndrome and their families from diagnosis to adulthood through education, advocacy, support, outreach, and social opportunities.

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Trisomy 21 Parent Peer Program

CHOP's Trisomy 21 Parent Peer Program provides support and resources to families of individuals with Down syndrome by matching them with fellow caregivers.

 

National Down Syndrome Organizations

 

National Down Syndrome Society

The National Down Syndrome Society is a leading human rights organization for all individuals with Down syndrome, involved in research, advocacy and education.

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321Foundation

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Down Syndrome Advocacy Foundation

The Down Syndrome Advocacy Foundation is a not-for-profit organization [501 (c) (3)] founded by a group of individuals who have children or family members with Down syndrome.  DSAF is dedicated to enhancing the lives of individuals with Down syndrome through advocacy and supporting inclusion within schools, communities, and the work place. 

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National Down Syndrome Congress

The National Down Syndrome Congress (NDSC) is a national advocacy organization that provides information and support concerning all aspects of life for individuals with Down syndrome.

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National Association for Down Syndrome (NADS)

NADS provides information about Down syndrome, including publications, videos, online discussion forums, conferences and seminars for families and healthcare professional.

 

Down Syndrome Affiliates in Action

At DSAIA, we strive to support and advance the growth and capacity of local and regional Down syndrome associations.  We provide the connections, the inspiration, training, and resources so that our members can meet the needs of individuals with Down syndrome in their communities.  Our members are leaders in every sense of the word.

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DS-Connex

Empowering Down syndrome Communities:  We share core values that support the rights of people with Down syndrome.  We have shared experiences with families meeting the needs of people with Down syndrome.  We support advocacy for our community in public policy making.  We value the role of the volunteer.  We believe collaboration builds a stronger community.  We embrace the sharing of ideas to strengthen local impact

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Down Syndrome Diagnosis Network 

DSDN is the largest national organization supporting new and expectant parents with a Down syndrome diagnosis. The mission of the Down Syndrome Diagnosis Network is to connect, support, and provide accurate information to parents - and the medical professionals who serve them - from the time of diagnosis through age 3 while fostering the opportunity for lifelong connections. Our vision is that every Down syndrome diagnosis will be delivered in an unbiased, factual, and supportive way every time and that families can quickly find meaningful connections.Since 2014, DSDN has been supporting families and helping them to find connections and information. 

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I’m Determined 

The I’m Determined project, a state directed project funded by the Virginia Department of Education, focuses on providing direct instruction, models, and opportunities to practice skills associated with self-determined behavior.

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Julia's Way 

An organization dedicated to inspiring parents, medical professionals, and the general public to reimagine what's possible for those living with Down syndrome through education, advocacy, and awareness.

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Down Syndrome Medical Interest Group (DSMIG-USA)

DSMIG-USA® is a group of health professionals committed to promoting the optimal health care and wellness of individuals with Down syndrome (DS) across the lifespan. Members of this DSMIG-USA are professionals from a variety of disciplines who provide care to individuals with Down syndrome and/or their families.

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Gigi’s Playhouse: Down Syndrome Achievement Centers

With over 55+ brick and mortar locations across the United States and Mexico and 200 inquiries to start new locations all over the world, GiGi’s Playhouse is the ONLY network of Down Syndrome Achievement Centers. Every day, we provide FREE, life-changing therapeutic, educational, and career training programs for 30,000+ individuals of all ages. Through free programs and through our Generation G Campaign for global acceptance, we EMPOWER families by maximizing opportunities for daily achievement and lasting acceptance. To ensure lasting acceptance, we must show the world what individuals with Down syndrome are truly capable of achieving as students, co-workers, volunteers, friends, and valued members of their communities. Our program outcomes help advance this vital social impact goal.

 

LuMind IDSC Foundation

We envision a world where every person with Down syndrome thrives with improved health, independence, and opportunities to reach their fullest potential. We accelerate research to increase availability of therapeutic, diagnostic, and medical care options and we empower families through education, connections, and support. myDSC is a FREE, online library designed specifically for the Down syndrome community. Curated by trusted professionals, myDSC is a comprehensive directory of evidence-based resources and useful tools for individuals with Down syndrome and their families. The library provides members with reliable, up-to-date information regarding: health and wellness, lifestyle, education, medical and research information.

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Down Syndrome Pregnancy 

http://downsyndromepregnancy.org

Down Syndrome Pregnancy, Inc. is a nonprofit New Jersey corporation that provides information and support to expectant parents preparing for the birth of a baby with Down syndrome.

 

Down Syndrome Research Foundation 

DSRF investigates best practices and initiates and participates in research studies to gain a better understanding of the learning styles of individuals with Down syndrome.

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International Down Syndrome Organizations

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Down Syndrome Education International

We work to improve early intervention and education for children with Down syndrome around the world. Our research focuses on developmental research designed to improve speech, language and communication skills, raise levels of achievement in literacy and numeracy, and support effective inclusion.

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Down Syndrome International (DSi)

We are a UK based international disabled people's organisation, comprising a membership of individuals and organisations from all over the world, committed to improving quality of life for people with Down syndrome, promoting their right to be included on a full and equal basis with others.

Down Syndrome Australia

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Down Syndrome Resource Foundation (DSRF - Canada)

Our vision is a Canada that values and empowers people living with Down syndrome, and promotes social and economic inclusion across the lifespan.

DSRF offers a wide variety of educational and health opportunities to children and young adults with Down syndrome, including ground-breaking one to one reading and math instruction, speech language therapy, occupational therapy, and a variety of adult education programs which prepare our students to live full and fulfilling lives in the community and workplace. Our programs are continually evolving based on the latest intervention research and best practice, and tailored to the individual learner's strengths, interests and needs. 

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Down's Syndrome Association (DSA - UK)

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Down's Syndrome Scotland

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Global Down Syndrome Foundation 

Dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy. GLOBAL’s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the United States committed solely to research and medical care for people with Down syndrome. The Global Down Syndrome Foundation created and organizes the Be Beautiful Be Yourself Fashion Show – and others including Dare to Play Football Camp with Ed McCaffrey, Denver Broncos Cheerleaders Dare to Cheer Camp, and the Global Down Syndrome Foundation Educational Grants.